Saturday, August 9, 2014

Tired of Being Me

It is true. I confess that lately I have been so very tired of being me. If only this were a nightmare that could end with the morning light, but there is no promise of relief on the horizon.  Now, I know that there are many people who are facing serious health issues. However, living with a chronic illness takes its toll on one's psyche. 

Struggling to keep a positive momentum, I have often forced myself to find a way to enjoy the moment.  Although, sometime I just get tired of the "handicapped" limitations of my life. Every, and I do mean literally every, physical activity requires thought.  A year ago, I referenced the "Spoon Theory."  Essentially, the theory is an attempt to illustrate the concept of how the day's finite energy is consumed differently for those with physical limitations.  The Spoon Theory postulates that we have approximately the same amount of spoons (energy) to spend in a day.  The caveat: handicapped people use more spoons on small tasks (getting dressed, taking a shower, eating a meal) than someone who is not handicapped.  For example, going out for a meal.  Take a moment to reflect on what your experience would entail. Before I can grab my coat and go, I need to be consider:

1. Is my electric scooter in the car?
2. Is the scooter battery charged?
3. Is the restaurant handicap friendly?  (Not accessible, friendly.)  For example: Are there stairs? Chairs not stools or couches? Can it accommodate my scooter or do we need to bring the manual wheelchair?
4. How much walking will be required?
5. Do I have someone to help me.  (Yes; I was one of those people that liked going out by myself.) 
6. Does the restaurant offer foods that are safe for me to eat?
7. Is there handicap parking near the entryway?

All this beforehand.  At first, you may think that all places meet some of the above requirements.  I can assure you, they do not. Many adhere to the laws, but the results are not handicap friendly at all.  Even using the restroom can be an overwhelming and exhausting experience. 

The end result?  I have just been tired of being me. 

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