Wednesday, August 27, 2014

YESTERDAY, TODAY, TOMORROW


Now that I am in the autumn of my life, I find it one of the most colorful and favorite times of my life.  The angst of the teenage years and the stress of the working, parent years have passed.  Time is now in abundance and the joy of the moment I had as a child has returned. Always having been contemplative, I have the pleasure of spending time reflecting, especially on the passage of my life.  And, I find those thoughts begin with my mother. 

As a child and young adult, I spent little time thinking about my mother as a person independent of my relationship with her.  She was nothing more than my mother.  Someone who was just "there for me."  Her role was relegated to a side player in the scenes of my life.

One of my strongest memories is how our house was the daily gathering place.  For many years, my mother was a "social being."  Because she was an extrovert extraordinaire, she had many friends.  People would call her on the telephone, come to visit, and invite her out to functions.  She laughed often and talked much.

As a teenager, I was embarrassed to be in her company.  Often, I would cringe because she had a strongly stated opinion about most things that were contrary to general public opinion.  For example, she held the opinion that the war in Vietnam was over oil rights. Despite this tendency of hers to voice her views, she truly was loved and respected.  I was amazed.

When she reached the autumn years of her life, I noticed a dramatic change in her behavior. My mother started to turn inward. The extravert became an introvert seemingly overnight.  As time progressed, she continued to withdraw from interacting with friends, family and neighbors.  It was a startling change.  For years, I could not figure out the reason.  Then one day, she was diagnosed with dementia.  Everything started to fall into place for me.  I watched as she become quieter and less verbal.

Finally, the mother I knew disappeared.  She lost her voice.  There was no yesterday, today, or tomorrow.

Friday, August 22, 2014

My Story Continues

Another birthday has passed and here I am.  The story of my life continues.   

I am my father's and my mother's child; however, I am my own child, too.  It could almost be said that my life is a casserole of the past, present, and future. Although many of the "ingredients" of my being were contributed by nurture and nature, I am the author of how the story gets told. 

One of the interesting nuggets of this truth is that every day I get to write another paragraph or chapter of my story. In fact, the authorship has always been mine to control and manipulate into a happy story or a sad story or victim story or a victor story. 

Another nugget is the realization the line between fact and fiction can be as blurry as a rain-drenched window. My mind obsessively compels me to make sense out of the world around me and my experience within that world. As I interpret my experiences, I write another line in my story book. 

So, today I write the following:  I have a good life.  I have good family and friends.  I had a good day and I will have a good tomorrow. 


Saturday, August 9, 2014

Tired of Being Me

It is true. I confess that lately I have been so very tired of being me. If only this were a nightmare that could end with the morning light, but there is no promise of relief on the horizon.  Now, I know that there are many people who are facing serious health issues. However, living with a chronic illness takes its toll on one's psyche. 

Struggling to keep a positive momentum, I have often forced myself to find a way to enjoy the moment.  Although, sometime I just get tired of the "handicapped" limitations of my life. Every, and I do mean literally every, physical activity requires thought.  A year ago, I referenced the "Spoon Theory."  Essentially, the theory is an attempt to illustrate the concept of how the day's finite energy is consumed differently for those with physical limitations.  The Spoon Theory postulates that we have approximately the same amount of spoons (energy) to spend in a day.  The caveat: handicapped people use more spoons on small tasks (getting dressed, taking a shower, eating a meal) than someone who is not handicapped.  For example, going out for a meal.  Take a moment to reflect on what your experience would entail. Before I can grab my coat and go, I need to be consider:

1. Is my electric scooter in the car?
2. Is the scooter battery charged?
3. Is the restaurant handicap friendly?  (Not accessible, friendly.)  For example: Are there stairs? Chairs not stools or couches? Can it accommodate my scooter or do we need to bring the manual wheelchair?
4. How much walking will be required?
5. Do I have someone to help me.  (Yes; I was one of those people that liked going out by myself.) 
6. Does the restaurant offer foods that are safe for me to eat?
7. Is there handicap parking near the entryway?

All this beforehand.  At first, you may think that all places meet some of the above requirements.  I can assure you, they do not. Many adhere to the laws, but the results are not handicap friendly at all.  Even using the restroom can be an overwhelming and exhausting experience. 

The end result?  I have just been tired of being me.