Living with muscular dystrophy is akin to living in a cage. It is as if am a bird whose wings have been clipped. When I am seated, you may not notice my physical limitations. Often, I hear the phrase, "You don't look sick." It is true - until I try to get up and move. Then, you will see the electric scooter and my struggle to move.
Every activity needs to be carefully considered before I embark on the journey of moving from one spot to another. There are many elements that I need to take into my decision-making process; I need to count the cost of every action. Taking a shower, for example, is so energy depleting that I need to take a nap afterwards. Preparing my own meals is no longer feasible. I dream of walking.
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